Arizona has a program called Kidscare which provides low cost health insurance for children who do not qualify for medicaid. We have been very blessed to qualify for this program and I've never had an issue paying the monthly premiums.
They used to have a similar program for parents of children that qualified for Kidscare and Patrick and I were covered for awhile on that as well but the premiums were pretty high. Still I was grateful for coverage and didn't begrudge having to pay for it.
Last fall, I received a letter stating that the legislature decided to end Kidscare for parents effective in 2 days - TWO DAYS! Nothing like being blindsided. Because of pre-existing conditions and the cost, we were unable to get private insurance for ourselves. Again I was grateful that Si was still covered and although her premium went up I gladly paid it.
I paid cash for all of my ER allergy/whatever they were visits from November to June (still paying on them) and the hospital would force me to apply for assistance because I had no insurance - I told them at one point I don't want to apply because I KNOW I don't qualify and was told that the hospital requires it - whatever - oh they gave Patrick insurance because he doesn't work but denied me - ugh like he'd ever go to the dr unless I dragged his ass
Fast forward to June when I was admitted to the hospital with pneumonia - again was told I needed to apply and the case worker came to talk to me and said because I was hospitalized and diagnosed with diabetes, I should qualify this time. I told her that Sierra was on Kidscare and Patrick was already covered so I just wanted to apply for myself. She said no problem and helped me with the paperwork since I was so dopey from all the morphine lol
I got a letter the day I was released from the hospital - July 7th - stating that Sierra and I had been accepted for AHCCCS. I called them immediately and told them that Sierra was on Kidscare and that I had just paid the July premium and I'd like her to stay on please. I was told that I "have to do what they tell me" and because she qualified for free she has to take it. Ok so I'm offering to give you money and you don't want it and you WONDER why your program is in trouble???? *serious head shaking here*
Fast forward again to September 2nd. I had scheduled a dental appointment for Si back in June and 9/2 was the first opening. We spent 2 weeks preparing her for this as she is terrified of the dentist. I get a call just as I'm getting ready to leave to pick her up from school that her Mercy Care is inactive. WTF???? Sometimes at the end of the month there's a small window when there's no coverage so I called them to see what was going on. Come to find out that MINE is inactive as well!
So I call my case worker and leave her a voice mail (she has YET to return my call) and then call the hospital and speak to the des office there and the guy tells me that it looks like I was approved for a "medspenddown" and that it only lasts 90-120 days and that I should have gotten a letter stating my benefits would expire on August 31st.. First of all, it's only been 72 days sunshine and second the letter I got doesn't say ANYTHING about that and third I never got a letter saying my benefits would expire. He pulled up the letter of acceptance and agreed that it said nothing about it only being for 90 days and that I need to call DES and ask that it be sent to policy and that will automatically give me three more months so that I can get all my medical taken care of.
So the next morning (the Friday before Labor Day mind you) I start calling my case worker and left her another vm, called back and asked for a supervisor and left him a vm, called about 15 other people before I was finally given the number for the supervising manager. I left HER a vm. SHE returned my call in about 10 minutes and said that my case worker dropped the ball and that she can reactivate us for 30 more days and that will give me time to renew my eligibility. I asked her about sending it to policy and she said she could do that instead of reactivating it but it could take 2 weeks and they could deny it.
She also told me that Sierra should automatically revert to Kidscare which was my biggest concern.
So, 8 days later we're still not activated so I said screw this and emailed the DES Client Advocate. She called and told me that the current Legislature made these decisions and put the caps on everything and that Sierra will go on the waiting list for Kidscare which is currently 1-2 years! Yup I said YEARS!!!
So I emailed the Governor's office, expressing my concern at being forced to take Si off kidscare and I got a response from her that while she cares about Arizona it's really not her problem and that they are forwarding my email to DES. Nice....
DES calls me back and tells me that the law enacted by Governor Brewer puts a cap on the number of kids who can be on kidscare and that it's not fair to the other kids that qualify if they put Sierra back on and that she will have to go to the back of the waiting list.
Okay so I'm mad, I'm hurt and disgusted. So I email EVERY member of the Arizona House and Senate along with our US Senators and Congressmen. Basically told them my story and how sad it is that the children of our state are being denied basic healthcare which parents are willing to pay for! Got one reply from some right wing nut that told me if people like me would stop freeloading off the system then maybe there'd be more to go around.....nice.
Most of the email replies say that if I'm not in their district they won't help blah blah blah - in other words if I can't vote for you, then you don't give a shit about my issue. My response to each and every one of them is that this is a growing problem in Arizona and is affecting children in EVERY district and being an election year, I'd think they'd want to try to help out their constituents! I also told them I'm prepared to go to the media if necessary!
I got a CALL from one Senator's assistant asking what they can do to help! I told her that they can call for the laws to be changed and not deny children health care. She said she was going to call her contact at DES and try to make them put Si back on Kidscare - thanks that's all good and shit but doesn't solve the problem that every other parent is going through.
At my doctor's office yesterday I was telling her all about this and she became LIVID - she said it's crap that they'll pay for unnecessary stuff but don't pay for the important things (law was just passed stating that medicaid in AZ will no longer pay for certain transplants or a number of other major surgeries) and that she would be willing to write a letter on my behalf to the Governor and that she knows her 5 partners would sign it as well and that her husband who is a surgeon would do the same and probably his 11 partners in their office! She told me when I come back in two weeks she'll have something for me - wow I felt so empowered by this and she told me that she's so proud of my tenacity lol
This morning I got an email from Senator Rebecca Rios and I quote
This is wrong, wrong, wrong. I am so upset to read your story and knowing that this is being repeated hundreds of times over makes it even more upsetting. The Republican legislature and the Governor implemented this situation by creating a cap and 'waiting list". They need to immediately reverse this decision. All Democrats opposed this move but because Republicans control the House, the Senate and the Governor's office, we were not able to stop it.
Sincerely,
Rebecca Rios
State Senator, District 23
I emailed her back and asked if I may use her name when I contact the media - she said absolutely.
So I've started a letters to the editors of the a number of Arizona newspapers and will be contacting the Networks as well
The people of Arizona need to know that their governor (she was not elected but was given office when Janet Napolitano left to go to Washington for homeland security) wants to totally eradicate affordable healthcare for their children!
I feel like I've bitten off more than I can chew but I think I'm up to the challenge
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